Cecille, I too am so sorry to hear about this.
I have no idea what you’re dealing with and can't offer any real advice but I also had no idea what the vets were telling me about a baby husky we chose to take home after a very poor prognosis.
Not to give you any false hope and the diagnosis is completely unrelated but let me share a bit of his story with you.
We were told he wouldn't make it six months, with his spine separating as his frame grew. They said it would be painful and we'd be left with a dog that couldn't walk.
He was also terribly malnourished with his mother on deaths door as well.
He was in good spirits that day though and appeared relatively normal, not in any pain, so we took him back home.
I had just started feeding a natural diet with our other dog and was sold on the benefits. I also knew that Vitamin C could provide great benefits to a malnourished dog. Glucosamine also seemed like an obvious choice as they were talking about skeletal growth making the spine going wonky. They said something about problems at the brain stem and to me brain food was Vitamin B. MSM and Recovery were also fairly new at that time and boasting great benefits in dogs.
Loaded with a hand full of vitamins, twice every day, (and that was an experience in itself with a young pup, but it was all we had) and a raw diet, we were determined to give this little guy the best few months of his life and as much of a fighting chance as we could.
He went everywhere with us and experienced more in his first few months than I've seen some dogs experience in a lifetime.
As he grew, his short circuiting became less and less. Everyone (vets and friends who were there to witness it) said he was having seizures but I swear to this day it was not.
He was completely coherent thru these, simply struggling to make his little muscles work. Yes, it looked like seizures but him being a little scared/unsure of what was happening and the way he flailed about, it did look like it but he would maintain eye contact with me the whole time. I just knew something wasn't connecting for him.
Six months came and went, and when he grew into his body the short circuiting stopped. Nobody expected him to live this long.
He also got Cushing's around the 6 year mark and their life expectancy on Lysodren is usually no more than 30 months.
He's almost 12 and appears just as healthy as my young ones some days. He has his issues, but he's happy, pain free and truly loves life.
Watching what this little guy deals each and every day, with a huge husky smile on his face, truly amazes me. He's taught me so much. He's a fighter and he wants to live. It's been a tough go for the little guy and fairly expensive, but we also want him to live just as bad.
Cecille, a diagnosis is often not a death sentence. Prepare for the worst but do the best you can and expect the best. The little guy just may surprise you.
Please give him a great big hug from me and a "you can do it too buddy" nudge from Garrett.